As the world marked World Sickle Cell Day this Friday, Founder of the Sickle Cell Awareness Initiative Ireland–Nigeria (SCAIIN), Esther Onolememen, paid tribute to people living with sickle cell disorder, describing them as “warriors” whose resilience continues to inspire families, healthcare professionals and advocates across the globe.
In a goodwill message commemorating the annual observance, Onolememen said the daily courage demonstrated by persons living with the disorder, despite its physical, emotional and social challenges, remains a powerful symbol of hope and perseverance.
She noted that thousands of affected families across the Niger Delta and beyond have continued to confront the realities of sickle cell disorder with remarkable determination, calling for sustained support to improve their quality of life.
The SCAIIN founder also commended the Niger Delta Development Commission (NDDC) for what she described as its growing commitment to improving healthcare access and support for families affected by the disorder.
According to her, the commission’s interventions have significantly expanded community-based awareness campaigns, health education, screening programmes and other healthcare services across the Niger Delta, bringing renewed hope to many families who had previously lacked access to adequate care.
She particularly praised the leadership of the NDDC Managing Director, Samuel Ogbuku, for demonstrating compassion and vision in prioritising vulnerable communities.
“Living with sickle cell disorder is far more than a medical journey. It is a daily testament to resilience, perseverance and strength. Our warriors and their families continue to inspire us through their courage and unwavering belief that a brighter future is possible,” she said.
Reflecting on progress made over the past year, Onolememen said collaboration among healthcare professionals, advocacy organisations, development partners, government institutions and local communities had produced measurable gains in public awareness, access to healthcare and support services.
She expressed optimism that stronger collaboration with the NDDC Directorate of Education, Health and Social Services and other stakeholders would lead to more sustainable programmes capable of improving health outcomes, promoting dignity and expanding opportunities for people living with sickle cell disorder.
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Beyond Nigeria, Onolememen acknowledged the contributions of healthcare professionals, researchers, patient advocates and caregivers across Africa working under the Umoja Africa Sickle Cell Consortium, noting that their efforts continue to strengthen advocacy, advance research and influence policies aimed at improving care for patients across the continent.
She also welcomed ongoing efforts in Ireland to implement a comprehensive Model of Care for Sickle Cell Disease, commending Ireland’s Health Service Executive for adopting a patient-centred approach that actively involves patients, clinicians, families and advocacy groups in healthcare planning.
According to her, the Irish model offers valuable lessons for Nigeria and other African countries seeking to strengthen healthcare systems through collaboration between governments, medical institutions and civil society organisations.
Onolememen urged governments, development partners and the private sector to use World Sickle Cell Day as an opportunity to increase investments in healthcare, research, advocacy and social support for people living with the disorder.
“Every life matters, every voice matters, and every effort counts. Together, we are breaking barriers, challenging stigma, improving care and creating opportunities for future generations. We must continue to work towards a future where no one living with sickle cell disorder is left behind,” she said.